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X-WR-CALDESC:Events for NEA Ambassadors
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DTSTART;TZID=America/Los_Angeles:20250624T080000
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UID:10000253-1750752000-1758733200@ambassadors.nationaleczema.org
SUMMARY:Participate in a Research Study for Parents of Children with Atopic Dermatitis
DESCRIPTION:Are you the parent of a child aged 8-17 who has been diagnosed with atopic dermatitis(AD)? \n\n\n\n\nYou may be eligible for a dissertation study on pediatric AD and anxiety by a researcher at Palo Alto University! \n\n\n\n\n\n\n\n\nYou may be eligible if: \n\nYour child has been given a physician diagnosis of atopic dermatitis\nYour child is between the ages of 8 and 17\nBoth parent and child must be able to read English\n\nParticipation involves: \n\nYou and your child will complete a one-time online survey that takes no more than 30 minutes\nAll responses are confidential and will help researchers develop more effective treatment approaches for children with AD\nYou can also be entered for a drawing to win one of five $50 Amazon.com gift cards\n\n\n\n\n\nLink to Survey: https://paloaltou.co1.qualtrics.com/jfe/form/SV_4U7VLsNQEI pQczI \nLink to Flyer \n 
URL:https://ambassadors.nationaleczema.org/event/participate-in-a-research-study-for-parents-of-children-with-atopic-dermatitis
LOCATION:online\, United States
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BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20250702T080000
DTEND;TZID=America/Los_Angeles:20250905T170000
DTSTAMP:20250702T224135Z
CREATED:20250702T175532Z
LAST-MODIFIED:20250702T224135Z
UID:10000255-1751443200-1757091600@ambassadors.nationaleczema.org
SUMMARY:Request your IRL Toolkit: Engage Your Legislators
DESCRIPTION:IRL Toolkits are officially back for 2025! This summer\, we’re featuring an Engage Your Legislators toolkit. Inside\, you’ll find all the tools you need to inform and engage your legislators’ local offices about eczema awareness and policy. \nWhether you participated last year or it’s your first time\, we invite you to request your own toolkit and help us make an impact for eczema awareness this summer. \nYou’ll be making a huge impact right in your own home state\, and you’ll even receive some cool IRL swag! \nReady to get started? Request your toolkit here. \n 
URL:https://ambassadors.nationaleczema.org/event/request-your-irl-toolkit-engage-your-legislators
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BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20250811T080000
DTEND;TZID=America/Los_Angeles:20250825T233000
DTSTAMP:20250811T200847Z
CREATED:20250811T200847Z
LAST-MODIFIED:20250811T200847Z
UID:10000258-1754899200-1756164600@ambassadors.nationaleczema.org
SUMMARY:Apply to be a Project Advisor in a NEA Research Study
DESCRIPTION:The National Eczema Association (NEA) would like to invite one patient and one caregiver to serve as project advisors for an upcoming research study on atopic dermatitis flares and the concept of remission. NEA believes in involving the community in research that is about them\, and this project advisor role for the study is a way for the patient/caregiver perspective to be included more holistically within the entire lifecycle of a research study. \nThe time commitment will be 17-20 hours total over the course of 1.5 years (from September 2025 to approximately May 2027) and you will be compensated for your time with an honoraria of $1\,100. Plus\, you will be listed as an author in the resulting publications from this study! \nThe activities will include both meeting virtually via Zoom to discuss with NEA research staff and reflecting independently on your own time on the results at different stages of the study as well as advising on materials for different aspects of the study. In addition\, you will have an opportunity to review and make comments from the patient/caregiver perspective on the two research abstracts and two scholarly articles that will be drafted by the NEA research team\, as well as help write the plain language summary for each article. \nWe are prioritizing individuals who have a proven track record of participation and follow-through on previous opportunities. It is also helpful if you have experience with being in “remission” or experiencing “low disease activity” – whatever that may look like to you! \nIf you are interested in this opportunity\, please submit your application here: https://www.surveymonkey.com/r/6KDJ3W8 \nThis is a time limited opportunity\, so please apply by August 25th to be considered. \nIf you have questions\, please reach out to Isabelle Thibau at isabelle@nationaleczema.org.
URL:https://ambassadors.nationaleczema.org/event/apply-to-be-a-project-advisor-in-a-nea-research-study
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20250813T080000
DTEND;TZID=America/Los_Angeles:20250930T170000
DTSTAMP:20250822T161934Z
CREATED:20250813T173224Z
LAST-MODIFIED:20250822T161934Z
UID:10000260-1755072000-1759251600@ambassadors.nationaleczema.org
SUMMARY:All Ambassadors: September Research Journal Club
DESCRIPTION:Don’t miss our next journal club on Tuesday\, September 30 at 4 p.m. PT / 7 p.m\, ET. Join us to hear about cutting edge eczema research from a fellow ambassador. No experience is needed! \nRSVP below to make sure you receive an email reminder before the meeting. \nZoom meeting link: https://us02web.zoom.us/j/82401823692?pwd=G6Tm8dbFada357hwmdbXAMD6atLkeW.1&from=addon \nContact @Allie532 if you’re interested in presenting and/or have any questions about the Research Journal Club.
URL:https://ambassadors.nationaleczema.org/event/all-ambassadors-september-research-journal-club
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BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20250826T160000
DTEND;TZID=America/Los_Angeles:20250826T170000
DTSTAMP:20250715T171244Z
CREATED:20250715T171214Z
LAST-MODIFIED:20250715T171244Z
UID:10000257-1756224000-1756227600@ambassadors.nationaleczema.org
SUMMARY:August Advocacy Ambassadors Virtual Gathering
DESCRIPTION:Whether you are brand new to advocacy with NEA Ambassadors or a seasoned pro\, we invite you to join us to learn more about how you can share your story with legislators and make a difference this summer and beyond. \nWe’ll be discussing how you can advocate for your home state to declare October as Eczema Awareness Month using a state proclamation. \nZoom Link: https://us02web.zoom.us/j/81471094600?pwd=4UBboryDImVqQLgfbOKt9l9wkaoWcC.1&from=addon
URL:https://ambassadors.nationaleczema.org/event/august-advocacy-ambassadors-virtual-gathering
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