NEA Ambassadors | Site-Wide Activity https://ambassadors.nationaleczema.org/news-feed/ Activity feed for the entire site. Tue, 04 Aug 2026 20:40:54 -0700 https://buddypress.org/?v=2.21.0 en-US 30 hourly 2 9a7b48b3075b15d898717ee5832a95d3 Susy: @Danica Dear Danica,Thanks for joining our team of […] https://ambassadors.nationaleczema.org/news-feed/p/7332/ Mon, 03 Aug 2026 22:07:21 -0700 @Danica

Dear Danica,

Thanks for joining our team of NEA Ambassadors! This is a meaningful way to make a difference in the eczema community.

To stay up to date on upcoming opportunities, keep an eye on the monthly Ambassador e-news and the events and opportunities calendar. You’ll find a variety of ways to participate based on your interest.

One…

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]]> 0 0f58a6147a6667dde82779645df040bc Susy: @Andy91 Dear Andy,Thanks for joining our team of […] https://ambassadors.nationaleczema.org/news-feed/p/7331/ Mon, 03 Aug 2026 22:06:33 -0700 @Andy91

Dear Andy,

Thanks for joining our team of NEA Ambassadors! This is a meaningful way to make a difference in the eczema community.

To stay up to date on upcoming opportunities, keep an eye on the monthly Ambassador e-news and the events and opportunities calendar. You’ll find a variety of ways to participate based on your interest.

One…

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]]> 0 334473082c14fcba8a1fdd1a37beeb4b Danica Aleina changed their profile photo https://ambassadors.nationaleczema.org/news-feed/p/7329/ Mon, 03 Aug 2026 04:37:41 -0700 0 60f01c0f330111ce7203809b0d64f336 Susy: @Lele Dear AlejandraThanks for joining our team of […] https://ambassadors.nationaleczema.org/news-feed/p/7327/ Thu, 30 Jul 2026 14:51:49 -0700 @Lele

Dear Alejandra

Thanks for joining our team of NEA Ambassadors! This is a meaningful way to make a difference in the eczema community.

To stay up to date on upcoming opportunities, keep an eye on the monthly Ambassador e-news and the events and opportunities calendar. You’ll find a variety of ways to participate based on your interests.

If…

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]]> 0 ecb30d7a7f6202d172e5f314999e05ec Susy: @Sierra104 Dear Enoch,Thanks for joining our team of […] https://ambassadors.nationaleczema.org/news-feed/p/7323/ Tue, 28 Jul 2026 16:39:05 -0700 @Sierra104

Dear Enoch,

Thanks for joining our team of NEA Ambassadors! This is a meaningful way to make a difference in the eczema community.

To stay up to date on upcoming opportunities, keep an eye on the monthly Ambassador e-news and the events and opportunities calendar. You’ll find a variety of ways to participate based on your interest.

One…

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]]> 0 23a4e4c76060c5d988370c7c0e6f40a1 Susy: @Sierra104 Dear Sierra,Thtanks for joining our team of […] https://ambassadors.nationaleczema.org/news-feed/p/7322/ Tue, 28 Jul 2026 16:38:09 -0700 @Sierra104

Dear Sierra,

Thtanks for joining our team of NEA Ambassadors! This is a meaningful way to make a difference in the eczema community.

To stay up to date on upcoming opportunities, keep an eye on the monthly Ambassador e-news and the events and opportunities calendar. You’ll find a variety of ways to participate based on your interest.

One…

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]]> 0 dfe802062afd39a4ef9e4e4d182f0aef Susy: @Jasper Dear Olayemi,Thtanks for joining our team of […] https://ambassadors.nationaleczema.org/news-feed/p/7321/ Tue, 28 Jul 2026 16:35:40 -0700 @Jasper

Dear Olayemi,

Thtanks for joining our team of NEA Ambassadors! This is a meaningful way to make a difference in the eczema community.

To stay up to date on upcoming opportunities, keep an eye on the monthly Ambassador e-news and the events and opportunities calendar. You’ll find a variety of ways to participate based on your interest.

One…

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]]> 0 bbd21de06abddcbf5cfdf2ed27051511 Susy: @Flora Dear FlorenceThanks for joining our team of […] https://ambassadors.nationaleczema.org/news-feed/p/7320/ Tue, 28 Jul 2026 16:34:11 -0700 @Flora

Dear Florence

Thanks for joining our team of NEA Ambassadors! This is a meaningful way to make a difference in the eczema community.

To stay up to date on upcoming opportunities, keep an eye on the monthly Ambassador e-news and the events and opportunities calendar. You’ll find a variety of ways to participate based on your interest.

One…

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]]> 0 0c49df834de4fb47e0ccc8294aa5b296 Susy: @Jess Dear Jessica,We’re so glad you’ve joined our team […] https://ambassadors.nationaleczema.org/news-feed/p/7319/ Tue, 28 Jul 2026 16:31:10 -0700 @Jess

Dear Jessica,

We’re so glad you’ve joined our team of NEA Ambassadors! This is a meaningful way to make a difference in the eczema community.

To stay up to date on upcoming opportunities, keep an eye on the monthly Ambassador e-news and the events and opportunities calendar. You’ll find a variety of ways to participate based on your interest.…

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]]> 0 87dfeb930774e9afea001150cfa82185 Cameron posted an update: Has anyone’s insurance denied Cibonuqo to a 9 year old? I […] https://ambassadors.nationaleczema.org/news-feed/p/7317/ Tue, 28 Jul 2026 13:38:37 -0700 Has anyone’s insurance denied Cibonuqo to a 9 year old? I had three previous insurance companies thaf approved it and mow Aetna won’t. i filed an appeal and annexternal appeal- all denied. Now i have filed a complaint with the Virginiw Business insurnace commission. how does someone get this medicine. I can’t afford 7k a month and this is…

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]]> 0 c1d10ba5f8a0048d85dc3cc8c05cf292 Brianna replied to the discussion Mental Health and Eczema <3 in the forum Connect https://ambassadors.nationaleczema.org/forums/discussion/mental-health-and-eczema-3/#post-8304 Wed, 22 Jul 2026 12:24:30 -0700 Reply to Mental Health and Eczema <3

I definitely noticed it but my family members, doctors and others didn’t see how it affected me. I was always being picked on through elementary to middle school and others would make fun and compare it to other ailments. It also made me less sociable and self insecure. My main issue with my eczema is when it heals it leaves my skin discolored and scarred.

]]> df8b1bbb7185676feb39b2227b7464da Susy: @0bssiddian006 Dear Brianna,We’re so glad you’ve joined […] https://ambassadors.nationaleczema.org/news-feed/p/7303/ Mon, 20 Jul 2026 16:01:13 -0700 @0bssiddian006

Dear Brianna,

We’re so glad you’ve joined our team of NEA Ambassadors! This is a meaningful way to make a difference in the eczema community.

To stay up to date on upcoming opportunities, keep an eye on the monthly Ambassador e-news and the events and opportunities calendar. A great way to get started is by participating in our …

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]]> 0 8dc97746a5f2b18f5bbf3574180eef06 Susy: @elizabeth Dear Elizabeth, We're so glad […] https://ambassadors.nationaleczema.org/news-feed/p/7297/ Thu, 16 Jul 2026 22:29:10 -0700 @elizabeth

Dear Elizabeth,

We’re so glad you’ve joined our team of NEA Ambassadors! This is a meaningful way to make a difference in the eczema community.

To stay up to date on upcoming opportunities, keep an eye on the monthly Ambassador e-news and the events and opportunities calendar. A great way to get started is by participating… Read more

]]> 0 9b237ac6a697749b4bc547c9c7dc95c7 Susy: @Fuglaar Dear Lauren,Thank you for joining our team of […] https://ambassadors.nationaleczema.org/news-feed/p/7296/ Thu, 16 Jul 2026 14:56:14 -0700 @Fuglaar

Dear Lauren,

Thank you for joining our team of NEA Ambassadors! This is a meaningful way to make a difference in the eczema community.

To stay up to date on upcoming opportunities, keep an eye on the monthly Ambassador e-news and the events and opportunities calendar. A great way to get started is by participating in our IRL toolkit…

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]]> 0 859e2b6cb015e3540dd980b60c8a9b58 Susy posted a new event. https://ambassadors.nationaleczema.org/?post_type=tribe_events&p=8009 Fri, 10 Jul 2026 20:30:24 -0700 All Ambassadors: Ambassadors Huddle

Join our Ambassadors Huddle, Thursday, September 17, at 4:30 p.m. PT / 7:30 p.m. ET via Zoom! Connect with fellow Ambassadors, celebrate recent accomplishments and get…

]]> 0 040ba21d1515675a09d6cebd47306396 Nora posted a new event. https://ambassadors.nationaleczema.org/?post_type=tribe_events&p=7974 Fri, 10 Jul 2026 16:21:24 -0700 0 a79dc23379c0d7ba8cdce8e387716e6a Susy: @Dyl Dear Dylan, Thank you for joining our team of […] https://ambassadors.nationaleczema.org/news-feed/p/7288/ Fri, 10 Jul 2026 15:35:50 -0700 @Dyl

Dear Dylan,

Thank you for joining our team of NEA Ambassadors! This is a meaningful way to make a difference in the eczema community.

To stay up to date on upcoming opportunities, keep an eye on the monthly Ambassador e-news and the events and opportunities calendar. A great way to get started is by participating in our IRL toolkit… Read more

]]> 0 79b48fa23ef34155ddf11c7b381a7d8f Susy posted a new event. https://ambassadors.nationaleczema.org/?post_type=tribe_events&p=8006 Fri, 10 Jul 2026 15:13:33 -0700 All Ambassadors: August Journal Club

Join Journal Club on Tuesday, August 11 at 4 p.m. PT / 7 p.m, ET, to hear about cutting edge eczema research from a fellow Ambassador.…

]]> 0 70a7096f1fb8a5148d72f882c271c54c Susy: @AngieV Dear Anjana,Thank you for joining our team of […] https://ambassadors.nationaleczema.org/news-feed/p/7281/ Tue, 07 Jul 2026 16:25:58 -0700 @AngieV

Dear Anjana,

Thank you for joining our team of NEA Ambassadors! This is a meaningful way to make a difference in the eczema community.

To stay up to date on upcoming opportunities, keep an eye on the monthly Ambassador e-news and the events and opportunities calendar. A great way to get started is by participating in our IRL toolkit…

Read more

]]> 0 7effe5b56cf2d081ee7a940f76756ecb Wilhelmina changed their profile photo https://ambassadors.nationaleczema.org/news-feed/p/7279/ Tue, 07 Jul 2026 15:10:22 -0700 0 b1d9412f659634071525c78d00eec77d Wilhelmina changed their profile photo https://ambassadors.nationaleczema.org/news-feed/p/7278/ Tue, 07 Jul 2026 15:09:26 -0700 0 48325717ae412e9652d1f1a97632eb61 Wilhelmina changed their profile photo https://ambassadors.nationaleczema.org/news-feed/p/7277/ Tue, 07 Jul 2026 15:08:21 -0700 0 067000409b280c76a75411d243b5230f ANTWAN changed his profile photo https://ambassadors.nationaleczema.org/news-feed/p/7274/ Wed, 01 Jul 2026 20:54:21 -0700 0 11a082d8c47b292aae6c1009db461db0 Nora posted a new event. https://ambassadors.nationaleczema.org/?post_type=tribe_events&p=7871 Wed, 01 Jul 2026 15:00:52 -0700 0 40345e51b3f66108fa65f4e6f9799213 Anjana changed their profile photo https://ambassadors.nationaleczema.org/news-feed/p/7271/ Mon, 29 Jun 2026 06:09:30 -0700 0 7b93552f29a5e2e0926c7bd20e586b38 Amanda replied to the discussion Eczema and Hives in the forum Connect https://ambassadors.nationaleczema.org/forums/discussion/eczema-and-hives/#post-7884 Sat, 27 Jun 2026 03:04:50 -0700 Reply to Eczema and Hives

Hi Diane,

My name is Amanda and I live 3 1/2 hours south of you! 🙂

I viewed your journal presentation regarding 487-gene expression profile. It was super interesting and I would like to see if my Allergist would be willing to test me. I would love to ask you some questions about the kit.

However, regarding your post, I was on Nemluvio myself. I…

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]]> 754080c9bdcb59ad0251fd28dc418cc1 Susy: @Rey Dear Diana,Thank you for joining our team of […] https://ambassadors.nationaleczema.org/news-feed/p/7267/ Wed, 24 Jun 2026 16:17:01 -0700 @Rey

Dear Diana,

Thank you for joining our team of NEA Ambassadors! This is a meaningful way to make a difference in the eczema community.

To stay up to date on upcoming opportunities, keep an eye on the monthly Ambassador e-news and the events and opportunities calendar. A great way to get started is by participating in our IRL toolkit…

Read more

]]> 0 fda24865a6d339a014e4393c25cceef9 Susy: @Lianne Dear, Lianne,Thank you for joining our team of […] https://ambassadors.nationaleczema.org/news-feed/p/7264/ Mon, 22 Jun 2026 21:08:53 -0700 @Lianne

Dear, Lianne,

Thank you for joining our team of NEA Ambassadors! This is a meaningful way to make a difference in the eczema community.

To stay up to date on upcoming opportunities, keep an eye on the monthly Ambassador e-news and the events and opportunities calendar. A great way to get started is by participating in our IRL toolkit…

Read more

]]> 0 c6426b17f705f51dcd881e22e0f54183 Victoria posted an update: Hi friends! Since there's no EXPO this year boooooo, […] https://ambassadors.nationaleczema.org/news-feed/p/7258/ Wed, 17 Jun 2026 23:33:21 -0700 Hi friends! Since there’s no EXPO this year boooooo, I wanted to share a little something cool. Some of you may know I’m a pharmacy student. I am doing last year of clinical rotations, and my next rotation is at a dermatology office! I’m super excited and hope to share some of the experience with you all (if allowed). For now, enjoy this…

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]]> 0 3019e157e6363b82f506da692bae8c3c Susy: @lilypaek Dear, SeojinThank you for joining our team of […] https://ambassadors.nationaleczema.org/news-feed/p/7257/ Wed, 17 Jun 2026 15:55:38 -0700 @lilypaek

Dear, Seojin

Thank you for joining our team of NEA Ambassadors! This is a meaningful way to make a difference in the eczema community.

To stay up to date on upcoming opportunities, keep an eye on the monthly Ambassador e-news and the events and opportunities calendar. A great way to get started is by participating in our IRL toolkit…

Read more

]]> 0 e65880a4f7fba760656ec1f6a16fcfd5 Diane started the discussion Eczema and Hives in the forum Connect https://ambassadors.nationaleczema.org/forums/discussion/eczema-and-hives Thu, 11 Jun 2026 19:39:41 -0700 Eczema and Hives

Hi eczema warriors!

I joined NEA Ambassadors back in October 2025 and this is my first time starting a new discussion. I was hoping to pick your brains for help because there’s nothing like a fellow eczema warriors’ experience. I’m using VTAMA non steroidal topical (since April 2024) and Nemluvio injection (since September 2025). I’ve grown…

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]]> 7d4f12de980a0d440d7128a6a6900638 Diane replied to the discussion New on board and avid skin care lover! in the forum Connect https://ambassadors.nationaleczema.org/forums/discussion/new-on-board-and-avid-skin-care-lover/#post-7858 Thu, 11 Jun 2026 18:47:21 -0700 Reply to New on board and avid skin care lover!

Hi Dr. Djirar! Welcome and so glad you’re here! I’m in the Houston area and would love to learn more and see where I can help or participate. Again, are you looking to do a virtual or in person event? Excited to hear from you!

]]> dfc0c21571ebdce18d8bab4013b5bed2 Susy posted a new post. https://ambassadors.nationaleczema.org/?p=7851 Thu, 11 Jun 2026 15:51:52 -0700 Ambassador Huddle Recording: June 9, 2026

NEA Ambassadors convened to connect with one another, learn about and celebrate recent accomplishments, and hear about upcoming opportunities including IRL toolkits. See the meeting…

]]> 4 aa302632374c4274f0542570199b1a86 Susy: @JordanKernke Dear, Jordan,Thank you for joining our team […] https://ambassadors.nationaleczema.org/news-feed/p/7245/ Thu, 11 Jun 2026 15:11:55 -0700 @JordanKernke

Dear, Jordan,

Thank you for joining our team of NEA Ambassadors! This is a meaningful way to make a difference in the eczema community.

To stay up to date on upcoming opportunities, keep an eye on the monthly Ambassador e-news and the events and opportunities calendar. A great way to get started is by participating in our IRL…

Read more

]]> 0 a6cd0b173f0c32338bf395769cdbbf86 Jordan changed their profile photo https://ambassadors.nationaleczema.org/news-feed/p/7244/ Thu, 11 Jun 2026 00:11:43 -0700 0 4ff8db57faf5ec5540f26fef9f328ff0 Susy posted a new event. https://ambassadors.nationaleczema.org/?post_type=tribe_events&p=7841 Tue, 09 Jun 2026 15:38:48 -0700 All Ambassadors: Take 5 Minutes to Advance Eczema Research

NEA Ambassadors, Your feedback helps build a better picture of eczema care. NEA is taking a closer look at how people with eczema find care…

]]> 0 bd80cb94b4f0ab7bddf253b0ad761a89 Diane updated their profile https://ambassadors.nationaleczema.org/news-feed/p/7237/ Mon, 08 Jun 2026 20:34:16 -0700 0 2ebfa1468e3d84aefa004494d66b6938 CARRIE changed her profile photo https://ambassadors.nationaleczema.org/news-feed/p/7236/ Mon, 08 Jun 2026 16:35:17 -0700 0 1c0bac687cf2d8c0ad36e68e19520c7d CARRIE changed her profile photo https://ambassadors.nationaleczema.org/news-feed/p/7235/ Mon, 08 Jun 2026 16:34:31 -0700 0 ac626118098c541c9950f2268536f933 Susy: @CARRIELEE Dear, Carrie,Thank you for joining our team […] https://ambassadors.nationaleczema.org/news-feed/p/7233/ Mon, 08 Jun 2026 16:18:26 -0700 @CARRIELEE

Dear, Carrie,

Thank you for joining our team of NEA Ambassadors! This is a meaningful way to make a difference in the eczema community.

To stay up to date on upcoming opportunities, keep an eye on the monthly Ambassador e-news and the events and opportunities calendar. It’d be great to see you at the Ambassadors Huddle next week, on…

Read more

]]> 1 a51f64c8347188c3f86dc4af82b6f564 Susy: @ifitzer Dear, Ireland,Thank you for joining our team of […] https://ambassadors.nationaleczema.org/news-feed/p/7232/ Mon, 08 Jun 2026 16:16:04 -0700 @ifitzer

Dear, Ireland,

Thank you for joining our team of NEA Ambassadors! This is a meaningful way to make a difference in the eczema community.

To stay up to date on upcoming opportunities, keep an eye on the monthly Ambassador e-news and the events and opportunities calendar. It’d be great to see you at the Ambassadors Huddle next week, on June…

Read more

]]> 0 e4f294c2c8a8888fb04f9365c8311767 Susy posted a new event. https://ambassadors.nationaleczema.org/?post_type=tribe_events&p=7796 Thu, 04 Jun 2026 18:24:29 -0700 NY/Tri-State Ambassadors: Join Us for an In-Person Workshop!

Join fellow NEA Ambassadors from the New York/Tri-State area for an engaging in-person Connect & Learn event designed to build community and grow your advocacy…

]]> 0 876fd4e95999f23d3f3020615c77a407 Allison posted a new post. https://ambassadors.nationaleczema.org/?p=7813 Thu, 04 Jun 2026 17:15:52 -0700 6/3/26 Journal Club Recap

Hi Ambassadors, We heard a great presentation from Diane about cutting edge research on technology that may help move forward personalized medicine and treatment decisions…

]]> 0 ad8819c36f05b2896da0475acb60fde3 Allison: Hi Ambassadors!Huge shout out to @DianeTrinh for […] https://ambassadors.nationaleczema.org/news-feed/p/7225/ Thu, 04 Jun 2026 16:38:28 -0700 Hi Ambassadors!

Huge shout out to @DianeTrinh for her incredible presentation at journal club yesterday. 👏

She presented on cutting edge research on technology from castle biosciences that tests non-invasive skin samples from people with atopic dermatitis to determine their genetic profile in order to guide treatment decisions.

Her…

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]]> 0 8cc58b753c541baed02acdfe1c782b63 Susy: @Virginia Dear, Virginia, Thank you for joining our team […] https://ambassadors.nationaleczema.org/news-feed/p/7224/ Wed, 03 Jun 2026 18:24:45 -0700 @Virginia

Dear, Virginia,

Thank you for joining our team of NEA Ambassadors! This is a meaningful way to make a difference in the eczema community.

To stay up to date on upcoming opportunities, keep an eye on the monthly Ambassador e-news and the events and opportunities calendar. It’d be great to see you at the Ambassadors Huddle on June 9th,…

Read more

]]> 0 9e811e8049fbffd78864d16908dcc90a Virginia changed her profile photo https://ambassadors.nationaleczema.org/news-feed/p/7223/ Wed, 03 Jun 2026 05:42:05 -0700 0 783d80c9c013cf0bad13ca4014031c32 Susy: @Adyan Dear, Adyan, We're so thankful you've joined […] https://ambassadors.nationaleczema.org/news-feed/p/7221/ Tue, 02 Jun 2026 16:03:02 -0700 @Adyan

Dear, Adyan,

We’re so thankful you’ve joined our team of NEA Ambassadors! This is a meaningful way to make a difference in the eczema community.

To stay up to date on upcoming opportunities, keep an eye on the Ambassador e-news and the events and opportunities calendar. I encourage RSVPing for the Ambassadors Huddle on June 9th, as this is…

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]]> 0 ab1312d8067c60ce924e0d598cd6944e Susy: @Thom Hello, Thomas,Thank you for joining our team of […] https://ambassadors.nationaleczema.org/news-feed/p/7217/ Wed, 27 May 2026 21:13:37 -0700 @Thom

Hello, Thomas,

Thank you for joining our team of NEA Ambassadors! This is a meaningful way to make a difference in the eczema community.

To stay up to date on upcoming opportunities, keep an eye on the Ambassador e-news and the events and opportunities calendar. I encourage you to RSVP for the Ambassadors Huddle on June 9th. This is a…

Read more

]]> 0 14953238bfe77f0296f2c294c8f13e63 Chris updated their profile https://ambassadors.nationaleczema.org/news-feed/p/7216/ Tue, 26 May 2026 19:09:17 -0700 0 e5a95a7d01f9d356a31df4f38c4d88e9 Kiara changed their profile photo https://ambassadors.nationaleczema.org/news-feed/p/7206/ Sat, 16 May 2026 02:44:56 -0700 0