Thank you for your interest in serving the eczema community! You’ll notice our registration page contains several questions. You might be wondering why we’re asking for so much information. Here’s why:

Each question you answer provides us with valuable insights into your eczema journey, which helps us match you to relevant opportunities to get involved in NEA’s mission.

Please bear with us as we gather this information. It’s all in the service of creating meaningful and rewarding volunteer opportunities for you. We appreciate your patience.

By creating an account you are agreeing to the Terms of Service and Privacy Policy.

Terms of Service

THIS SITE AND RELATED SERVICES ARE PROVIDED SUBJECT TO THESE TERMS AND CONDITIONS. PLEASE READ THE FOLLOWING INFORMATION CAREFULLY. YOUR CONTINUED USE OF THIS SITE WILL INDICATE YOUR AGREEMENT TO BE BOUND BY THE TERMS AND CONDITIONS SET FORTH BELOW. IF YOU DO NOT AGREE TO THESE TERMS AND CONDITIONS, PROMPTLY EXIT THIS SITE.

At this point NEA Ambassadors is only open to patients or loved ones of people with eczema who are interested in participating in NEA’s advocacy, research and outreach efforts (by sharing their experience as a patient or caregiver). Currently, the program is not open to other stakeholders including researchers, scientists and health care providers who do not have eczema or do not have a connection to a loved one with eczema. External stakeholders will be removed from the site.

1. General

These Terms and Conditions of Use (the “Terms and Conditions”) govern your use of this web site provided by the National Eczema Association (NEA), including without limitation use of all services, content, data, images, information and other materials posted on or available through this Site (collectively, the “Site”).

2. Trademark

The National Eczema Association name and logo, and all related product and service names, are NEAs proprietary trademarks and service marks, and may not be used by any other party without the prior express written permission of NEA.

3. No Medical Advice

The information posted here by the National Eczema Association or any third party should not be considered as medical advice and is not intended to replace consultation with a qualified physician. The National Eczema Association does not answer specific medical questions or provide endorsements or recommendations to any particular product, treatment or provider.

4. Use of The Site

The National Eczema Association hereby grants you a nonexclusive license to use the Site solely for your personal, non-commercial use. As a condition of your use of this Site, you warrant to the National Eczema Association that you will not use the Site for any purpose that is unlawful or prohibited by these Terms and Conditions. You may not reverse engineer, deconstruct, disassemble or decompile any software or technology underlying the Site or provided through the Site, except to the extent permitted by applicable law. If you breach any of these Terms and Conditions, your authorization to use this Site shall automatically terminate. The contents of the Site may not be distributed, modified, reproduced, or used, in whole or in part, without the prior written consent of the National Eczema Association, except that you may download content from the Site to any single computer, provided you keep intact all copyright, trademark, and other proprietary notices. Except as provided in these Terms and Conditions, any use of these materials on any other Web site or networked computer environment for any purpose is prohibited.

Users of this site must be at least 18 years old and agree to the Code of Conduct.

5. Privacy Policy

The National Eczema Association vigorously guards the privacy of the information it receives from individuals. NEA’s privacy procedures include the following: NEA does not sell, rent or divulge personally identifiable information to anyone unless required by law, with the exception that donors are listed in the NEA newsletter unless requested otherwise.

6. Copies of These Terms and Conditions; Updates

You may print a copy of these Terms and Conditions using the print button or feature in your browser. We suggest retaining a copy for your future reference. You should be aware, however, that we may revise these Terms and Conditions at any time, and by your continued use of the Site agree to be bound by future revisions. It is your responsibility to periodically visit the “Terms and Conditions” link on the Site to review the most current version of the Terms and Conditions. You may use your browser to print copies of any updated Terms and Conditions.

7. Copyright

All materials posted on this site are subject to copyrights owned by the National Eczema Association (NEA) and other individuals or entities. Reproduction, re-transmission or reprinting is prohibited without prior written permission from the National Eczema Association or the other copyright owner. The Site is owned and operated by the National Eczema Association (referred to as “the NEA, “we,” “us,” or “our” herein). All services, content, data, information and other materials on or directly accessible from the Site are owned by the National Eczema Association, its subsidiaries, affiliates, licensors and/or vendors. The Site is protected by United States and international copyright and trademark laws. Any copies that you make of material or other content provided through the Site must contain the same copyright and other proprietary notices that appear with the material or content.

8. No Framing

You may not frame or utilize framing techniques to use, surround or enclose any portion of the Site without the National Eczema Association’s express written consent.

9. Jurisdictional Issues

This Site is controlled and operated by the National Eczema Association from its offices within the State of California, United States of America. The National Eczema Association makes no representation that materials in the Site are appropriate or available for use in other locations. Those who choose to access this Site from other locations do so on their own initiative and are responsible for compliance with local or national laws, if and to the extent local or national laws are applicable.

10. Disclaimer of Liability

THIS SITE, INCLUDING ANY CONTENT OR INFORMATION CONTAINED WITHIN IT OR ANY SITE-RELATED SERVICE, IS PROVIDED “AS IS,” WITH ALL FAULTS, WITH NO REPRESENTATIONS OR WARRANTIES OF ANY KIND, EITHER EXPRESSED OR IMPLIED, INCLUDING, BUT NOT LIMITED TO, THE IMPLIED WARRANTIES OF MERCHANTABILITY, FITNESS FOR A PARTICULAR PURPOSE, QUIET ENJOYMENT, QUALITY OF INFORMATION, AND TITLE/NONINFRINGEMENT. YOU ASSUME TOTAL RESPONSIBILITY AND RISK FOR YOUR USE OF THIS SITE, SITE-RELATED SERVICES, AND HYPERLINKED WEB SITES. NO ORAL OR WRITTEN INFORMATION OR ADVICE GIVEN BY THE NATIONAL ECZEMA ASSOCIATION OR THE ASSOCIATION’S AUTHORIZED REPRESENTATIVES SHALL CREATE A WARRANTY OR IN ANY WAY INCREASE THE SCOPE OF THIS WARRANTY.

11. Limitation of Liability

THE NATIONAL ECZEMA ASSOCIATION AND ITS AFFILIATES, VENDORS, LICENSORS, AND OTHER THIRD PARTIES MENTIONED ON THE SITE ARE NEITHER RESPONSIBLE NOR LIABLE FOR ANY DIRECT, INDIRECT, INCIDENTAL, CONSEQUENTIAL, SPECIAL, EXEMPLARY, PUNITIVE, OR OTHER DAMAGES WHATSOEVER (INCLUDING, WITHOUT LIMITATION, THOSE RESULTING FROM LOST PROFITS, LOST DATA, OR BUSINESS INTERRUPTION) ARISING OUT OF OR RELATING IN ANY WAY TO THE SITE, SITE-RELATED SERVICES AND PRODUCTS, CONTENT OR INFORMATION CONTAINED WITHIN THE SITE, AND/OR ANY HYPERLINKED WEB SITE, WHETHER BASED ON WARRANTY, CONTRACT, TORT, OR ANY OTHER LEGAL THEORY AND WHETHER OR NOT ADVISED OF THE POSSIBILITY OF SUCH DAMAGES. YOUR SOLE REMEDY FOR DISSATISFACTION WITH THE SITE, SITE-RELATED SERVICES, AND/OR HYPERLINKED WEB SITES IS TO STOP USING THE SITE AND/OR THOSE SERVICES. APPLICABLE LAW MAY NOT ALLOW THE EXCLUSION OR LIMITATION OF INCIDENTAL OR CONSEQUENTIAL DAMAGES, SO THE ABOVE LIMITATION OR EXCLUSION MAY NOT APPLY TO YOU.

12. Accuracy and Integrity of Information

Although the National Eczema Association attempts to ensure the integrity and accurateness of the Site, it makes no guarantees whatsoever as to the correctness or accuracy of the Site. It is possible that the Site could include typographical errors, inaccuracies or other errors, and that unauthorized additions, deletions and alterations could be made to the Site by third parties. In the event that an inaccuracy arises, please inform the National Eczema Association so that it can be corrected. Information contained on the Site may be changed or updated without notice.

13. Your License to Us

Any communications or material of any kind that you e-mail, post, or transmit through the Site (excluding personally identifiable information of students), including, questions, comments, suggestions, and other data and information (your “Communications”) will be treated as non-confidential and non-proprietary. You grant the National Eczema Association a non-exclusive, royalty-free, perpetual, world-wide, irrevocable license to reproduce, transmit, display, disclose, and otherwise use your Communications on the Site or elsewhere for our business purposes. We are free to use any ideas, concepts, techniques, know-how in your Communications for any purpose, including, but not limited to, the development and use of products and services based on the Communications.

14. Your Communications

The National Eczema Association may, but is not obligated to, monitor or review any areas of the Site where user Communications may be made available, including, but not limited to, chat rooms, bulletin boards and other user forums. The National Eczema Association, however, will have no liability related to the content of any such Communications, whether or not arising under the laws of copyright, defamation, privacy, obscenity, or otherwise. The National Eczema Association retains the right to remove, in its sole discretion, Communications that include any material deemed abusive, defamatory, obscene or otherwise inappropriate.

15. Acceptable Use Policy

You may not transmit any material on or through the Site that (a) restricts any other user’s enjoyment of the Site, (b) is unlawful, threatening, abusive, libelous, defamatory, pornographic, profane or otherwise offensive, (c) constitutes or encourages criminal conduct, gives rise to civil liability, or otherwise violates any law, (d) violates or infringes the rights of any third party including, without limitation, patent, copyright, trademark, privacy or any other proprietary right, (e) contains a virus or other harmful component, or (f) contains false or misleading indications of origin or statements of fact. The National Eczema Association reserves the right at all times to disclose any information as necessary to satisfy any law, regulation, government request, court order, subpoena or other legal process, or to edit or remove any information, in whole or in part, that in the National Eczema Association’s sole discretion is objectionable, disruptive to the Site or in violation of these Terms and Conditions.

16. Links or Pointers to Other Sites

The National Eczema Association makes no representations whatsoever about any other Web site that you may access through this Site. When you access a non- National Eczema Association site, please understand that it is independent from the National Eczema Association and that the National Eczema Association has no control over the content on that Web site. In addition, a hyperlink to a non-National Eczema Association web site does not mean that the National Eczema Association endorses or accepts any responsibility for the content, or the use, of the linked site. It is up to you to take precautions to ensure that whatever you select for your use or download is free of such items as viruses, worms, Trojan horses and other items of a destructive nature. If you decide to access any of the third-party sites linked to this Site, you do this entirely at your own risk.

17. NEA Social Media Disclaimer

Information posted on any of NEA’s social media sites should not be considered medical advice, a medical recommendation, diagnosis or treatment suggestion. It is not intended to replace consultation with a qualified physician or other health care provider. All links to other sites found linked to NEA’s social media sites are provided as a service to our community, but such linkage does not constitute endorsement of those sites by NEA, and as such NEA is not responsible for the content of external Web sites. We welcome and encourage discussion on our sites however, NEA reserves the sole right to review, edit and/or delete any comments it deems are inappropriate, including comments that are abusive, use profanity, are defamatory, or contain “hate speech”. By posting on NEA sites, you assume all responsibility related to the security, privacy and confidentiality risks inherent in sending any content over the Internet. By posting a comment or material of any kind to NEA sites, you agree to the Terms and Conditions as set forth above.

18. Right to Remove Users

We reserve the unconditional right to remove any user from our site, including the suspension or termination of user accounts and the removal of posted content. Instances where such actions may occur include but are not limited to:

Violation of our terms of service, code of conduct, or other policies.
Engaging in prohibited activities as outlined in our terms of service.
Behavior that disrupts the functionality or integrity of our platform.
Failure to meet eligibility criteria for participation in specific programs or services offered on our site.
Any other action or behavior deemed harmful, inappropriate, or contrary to the interests of our platform.

19. Entire Agreement

Except as provided below, these Terms and Conditions constitute the entire agreement between the National Eczema Association and you pertaining to the subject matter hereof. In its sole discretion, the National Eczema Association may from time-to-time revise these Terms and Conditions by updating this posting. You should, therefore, periodically visit this page to review the current Terms and Conditions, so you are aware of any such revisions to which you are bound. Certain provisions of these Terms and Conditions may be superseded by expressly designated legal notices or terms located on particular pages within this Site.

THIS LEGAL NOTICE IS SUBJECT TO CHANGE WITHOUT NOTICE.

Privacy Policy

WHAT IS NEA’S PRIVACY POLICY?

The National Eczema Association (NEA) respects the privacy of each individual who contacts us. We are grateful for your support and the critical role you play in helping us continue our valuable work. To protect your privacy, we provide this notice explaining our information practices and the choices you can make about the way your information is collected and used.

COLLECTION & USE OF DATA

In order to provide our users the best experience possible on our website, we collect information about visitors to our site, such as the number of visitors, what pages they access and the length of their visit. This type of information is shared outside the National Eczema Association only as compiled data and no information that can identify any one individual.

We collect information such as your name, postal address and e-mail address when you choose to share that information. Examples include: when you request information from us, register for an event, make a donation, or contact us offline. This information is used to provide you with information or deliver the materials you have requested. If you provide your postal or e-mail address to the National Eczema Association, you will receive postal and e-mail communications from us. We also collect demographic and profile data at our site and in our databases. We use the data you provide to tailor your experience on our website and develop programs and services that might be of interest to you.

OPTING OUT OF COMMUNICATIONS

We send out electronic and other communications to National Eczema Association constituents to highlight news, information and opportunities available from the National Eczema Association. You can elect not to receive communications from us, either by updating your communications preferences or by contacting us at info@nationaleczema.org. In addition, all National Eczema Association e-mail communications have easy-to-follow unsubscribe instructions at the bottom of each e-mail.

RIGHT TO BE FORGOTTEN

In accordance with the European Union’s (EU) General Data Protection Regulation (GDPR), as of May 25, 2018 any individual may request that their information be deleted, corrected, frozen, or updated as desired. To request this, please contact us.

USE OF COOKIES

“Cookies” are small pieces of information that are stored by your web browser on your computer’s hard drive. The National Eczema Association website uses cookies to verify forms. Consult the help menu on your web browser regarding options for preventing or accepting cookies. Please be aware that if you block cookies, some of our website functions may not be available to you.

SHARING INFORMATION WITH OTHERS

NEA does not share your personal information with any outside organizations, companies, or other entities.

We may share such personal information when we believe release is appropriate to comply with the law, enforce our rights, or protect the safety of our constituents or others.

CHILDREN’S PRIVACY ONLINE

Protecting the privacy of children is especially important, and for this reason we have adopted certain policies and procedures to help do so.

The Information We Collect
As described in this Privacy Policy, we directly collect personally identifiable information from a child when a user submits a form through our website. This information may include the child’s name, age, email address, gender, address and country of residence. We may also request a user name and email address so that we may respond to an inquiry.NEA uses personally identifiable information to help provide the most appropriate and thorough answers to questions. For example, NEA may use an email address to seek more detailed information in order to answer a submitted question or to provide a private answer to a question. Typically, NEA will not condition the child’s participation in any activity on the website on the disclosure of any more information than is reasonably necessary to participate.Additionally, when visitors come to our site, we may passively collect certain non-personally identifiable computer information. This information may include the user’s: type of computer operating system (e.g., Windows 7 or Mac OS X Snow Leopard), the user’s IP Address, the user’s web browser (e.g., Mozilla Firefox or Internet Explorer), the frequency with which users visit various parts of our sites, and information regarding the user’s Internet service provider. We do this in order to make our sites more interesting and useful to you and for various purposes related to NEA. We may collect this non-personally identifiable information through the use of software technologies such as unique identifiers or “cookies.” Cookies are small text files that we place in visitors’ computer browsers to store their preferences. You can choose to have your computer warn you each time a cookie is sent, or you can choose to “turn off” the acceptance of cookies from any website. If you turn cookies off, you won’t have access to many features that make your Web experience smoother, and some of our services may not function properly.
How We Use, Disclose, and Store the Information We Collect
In addition to the purposes described in Section 1, we may actively collect and use personally identifiable information to track usage and to ensure users are following the site’s Terms of Use. In addition, we may use personally identifiable information to ban a user temporarily or permanently from the website if that user engages in inappropriate conduct on the site.We may disclose information where we are required to do so by law, for example, in response to a court order or a subpoena, or for other judicial process. We may also disclose information reasonably necessary to protect the safety of a child or a participant on this website. We may disclose information to service providers or other affiliated companies who provide support for the operations of our website and who we believe do not use or disclose the information for any other purpose. To the extent permitted by applicable law, we also may disclose personally identifiable information in response to a law enforcement agencies or other public agencies (including schools or children services) request or if we feel that such disclosure may prevent the instigation of a crime, facilitate an investigation related to public safety or protect the safety of a child using our website, to protect the security or integrity of our website, or enable us to take precautions against liability. When possible, we will use reasonable methods of providing parents notice of this disclosure.

Collection of Information for Third-Party Sites and Sponsors
Information about children is not collected for marketing purposes, and it is not disclosed to third parties. Nor do we allow third-party companies to advertise to our users. We intend to keep this site free from direct advertising.

Security
We have established and maintain reasonable procedures to protect the confidentiality, security, and integrity of personal information collected from children.

Contact Us
If you have questions or wish to send us comments about this Privacy Policy, please send an e-mail with your questions or comments to info@nationaleczema.org or write us:
National Eczema Association
505 San Marin Drive, #B300
Novato, CA 94945

When contacting us, please be sure to provide us with your e-mail address and a telephone number where we can reach you.Unless you so request, any personal information that you provide in communications to the above e-mail and postal mail addresses will not be used to send you promotional materials.

SECURITY

In order to prevent unauthorized access and protect our users’ personal information, we strive to maintain physical, electronic and administrative safeguards to secure the information we collect online. For example, online shopping and contributions are processed using a secure server. This secure server software, SSL (Secure Sockets Layer), encrypts all information you input before it is sent to us. Furthermore, all of the customer data we collect is protected against unauthorized access with the use of digital certificates.

LINKS TO OTHER SITES

Our site provides links to other websites where you can find out more about our partners, other organizations, or products and services related to eczema and atopic dermatitis. Please note that the National Eczema Association is not responsible for the information practices of linked sites. We encourage you to review the privacy policy of each site you visit.

PRIVACY POLICY CHANGES

The privacy policy set out above is effective as of July 23, 2016, and applies to all information previously obtained by NEA. We reserve the right to change the privacy policy at our sole discretion. Changes to the National Eczema Association privacy policy will be posted on our website. We encourage you to review our policy from time to time.

QUESTIONS OR CONCERNS

The National Eczema Association welcomes your questions and comments about this privacy statement, about the practices of the National Eczema Association, and about your experiences with this website. To contact us with questions about our privacy policy:

National Eczema Association

505 San Marin Drive, Ste. B300
Novato, CA 94945

Phone: 415-499-3474 or 800.818.7546
Fax: 415.472.5345
Email: info@nationaleczema.org